Since Sarah wrote the last update, thought I would take my turn again. Today Elora is 1 week old. In some ways it seems as if the last week flew by and in other ways it feels like about a year's worth has happened. We are getting to know Children's Hospital quite well, and today took advantage of dinner provided by volunteers at the Ronald McDonald House. What an amazing place to help take care of the families who are working through some really tough situations. I especially appreciated it because I realize I haven't been eating very much over the past couple of weeks and I don't want to be skin and bones when Elora comes home.
Elora has shown some positive signs that are worth celebrating. She switched from a higher powered ventilator to the normal one that is in some ways less abrasive to the lungs. She has been responding well and they are setting the amount of help she has been receiving lower each day. There has even been talk of taking the breathing tube out in the next couple of days. In addition to this, we are still waiting to get the digestive system going and it is possible that we would begin giving her some milk in the next couple of days.
Beyond the positive signs, we did get some pretty big news that isn't so rosy. After a follow up brain scan, they have found that Elora has some bleeding in her brain. The amount appears to be fairly significant and this could cause some major issues for her long term. Many children who have similar bleeding end up developing cerebral palsy or other types of physical and/or cognitive disabilities. Needless to say we were pretty shocked and continue to work through this new information. These are the times in life when you ask yourself if you really believe in God or not. It's one thing to say "Thank you Jesus" when things are going well, and quite another when your heart is broken. We are choosing to step out into the space beyond what we can control, and ask God to intervene on our behalf and heal Elora's body. We have been humbled and encouraged by all who are partnering with us in asking for this as well.
I'll close by just saying that the song "Because He Lives" has been going over and over in my mind. There is an amazing version of this on YouTube by Kim Burrell (the best runs you will find anywhere), but these words have been particularly helpful in calming me down and grounding me in the reality that God loves us and can be trusted with the days to come, no matter the outcome.
Because He lives, I can face tomorrow
Because He lives, all fear is gone
Because I know who holds the future
And life is worth the living, just because He lives.
God sent His son and they called him Jesus
He came to save, heal and forgive
He bled and died to buy my pardon
An empty grave is there to prove my Saviour lives.
We love all three of you so much...we are praying forr you and baby Elora to have a full recovery and wow all of the hospital staff...for God's glory alone. Thanks for the updates.
ReplyDeleteLove you and baby Elora! Great news about the ventilator. Nora prayed today that God would bring her a special band-aid to stop the bleeding. We'll keep praying for healing!
ReplyDeleteHi there -- I came over here because of our mutual friend Katie K -- who I know through church and ballet. I will keep your sweet baby Elora in my prayers. Children's Hospital is an excellent hospital.
ReplyDeleteBlessings,
Rachel
Morrow Family,
ReplyDeleteI am celebrating with you the small victories and find myself praying many times a day for baby Elora. May God heal her and make her strong. I will continue to keep my thoughts and prayers coming your way.
Take care - Lisa Reberg
Praying for complete healing for Elora. What beautiful lyrics to end the post with and a good reminder.
ReplyDeleteKeeping you all in my prayers - Elora has already proven she is a very strong little baby - keep the faith and we are all here to support you! Hugs to all of you!
ReplyDeleteKristin Nordling
I can not stop thinking about you! Bought some crazy little trickets for Elora in my favorite store that I always bought you gifts from, and I cannot wait to give them to all of you safely at home. My prayers are with you....
ReplyDeleteSending prayers from Michigan!!
ReplyDelete-Julie Poole
Sarah, Peter, and Elora,
ReplyDeleteSteph Gullifer asked me to be praying for you guys. Thank you for introducing the rest of us to your beautiful daughter! You are all in my prayers as you heal, Sarah, as Elora grows healthy and strong, and as Peter, you do best what a dad and husband does...love your girls!
Just know I'm praying for you guys and will be lifting you on this journey before the Lord. Hospital life can be exhausting, so I pray for Sarah's quick discharge so you two can be healthy and strong for that sweet baby girl...and Pete, even though eating seems like the last thing you want to do, you've got to for them :) Sorry this is so long...just really want you two to know I am praying for you all!
Love always,
Adrienne Graves, your old RD
Our Dear, Little Sister Elora - We are talking to God a lot about you these days. Asking God to help you, to heal you, to hold you in the palm of his hand. Wanting you to know that all our wishes and worries for you and your mom and dad are whispers of God's care. Wanting God to know that what we really, really, really want for you is for you to be safe and to grow strong and to be well. Love, ~The Dixons
ReplyDeleteI just wanted to say, I found your blog through Angie's FB post and you have our prayers each and every day until sweet Elora comes home to your arms as a strong healthy baby. We went through a life or death NICU experience with our daughter and I know the absolute bittersweet experience of being happy about her birth and her life, and yet fearful of what could come. Been there done that, prayed on our knees nightly for healing for our daughter and God answered. That was 4 years ago this week.
ReplyDeleteWe, along with our kids will pray on our knees nightly for Elora and both of you as well. God hears. Sending you all love and strength and sending Elora prayers for healing. JW :)
I just love Little Elora so so much!!
ReplyDeleteDear Peter, Sarah, & Elora,
ReplyDeleteIt's so wonderful that you can get such encouragement from so many people on this crazy computer! Great Uncle Larry & Great Aunt Gayle just want to add their prayers, praises, & hopes to you three. What would we do without the great loving arms of our Heavenly Father holding us & loving us more than anyone. Wish we could be there to hug you & be with you. But Jesus is much better doing that. "Because of the Lord's great love we are not consumed, for His compassions never fail. They are new every morning; great is your faithfulness!" Lam. 3:22-23 We love you all so much.